| Ain't she cute? Hard to believe she is dead.
Welcome to Maxine: Slightly Irregular. Max was born on April 3,
1999 and died on January 23, 2000. You can do the math. My wife
and I have put this site together for people to learn a little bit
about a kid who was a little less than perfect, about what real
love is, and also to try and explain what real pain is. We think
we can do all right on the first one, and maybe passable on the
second; but I doubt if we can teach you about even a small fraction
of the last. It is probably better that way. No one should have
to feel what we do. Not for one minute. Not for a lifetime.
This site may offend some. There will be some inconsiderate words
and some harsh images. We are not out to sugarcoat anything. We'd
like you to understand that Maxine was very much a wanted child
even though we were unprepared for all that occurred during our
brief time together. We were very fortunate to have both the support
and resources to get a handle on many of her problems. Not every
family has that advantage. And despite at times feeling nothing
but contempt and loathing for all the problems that Maxine was born
with, we have never, nor will ever again, feel a greater love than
that which we have for our daughter. We miss you, Pooter.
The links to the left are in chronological order from top to bottom.
The Addenda link will show you some sites that may be of interest
to you should you wish to continue learning more about Trisomy 21
or Down Syndrome. |